Update 2-25-09

I just received this from Elizabeth.


Jacob recovered well from his VNS implant. The surgeon said he would see us back in 7 years (when the battery runs out). We are now in the process of having the device "turned up" about every two weeks by the neurologist. It is pretty amazing, we go in for about 10 minutes and with a device that looks like an iphone, the doctor punches in some numbers and that is it.

If it is possible, Jacob has gotten even happier since the VNS was implanted. He is always happy and smiling and is such a joy to be around. So far we have not seen any change in his seizure activity but we were warned that we may not see much change for 3-6 months.

Please keep Jacob in your prayers over the next few months as the doctor works with the "dosage".

Thanks to Everyone!

Elizabeth

Thank you all for your prayers. I know Elizabeth and Trey appreciate it, and I know Jacob needs them.

Lord, I pray that You would make this transition smooth for Jacob and grant him peace and happiness.

Still Praying!

Jacob..

I thought of you all day... We are still praying for you:)

Lots of love,
Loryn

Jacob's Surgery

Jacob got through his surgery with flying colors! Thanks for all of your prayers. We were a little unsure when they gave him the "margarita" meds and he started standing on the bed. I guess it did not have the effect they were looking for, but once they got him sedated, it all went well. One hour later, we hung out with him in the recovery room (that is only iodine on his skin) until he woke up. About a half an hour later he woke up and drank some juice and we got the ok to take him home. He has been asleep the whole day except to have a little chicken noodle soup and pudding. He will be having the device turned on on Wednesday morning.
The incisions are small and should heal quickly. Now we wait to see if the VNS works for Jacob. So don't stop the prayers, for we still need them everyday.
Thank you!
Elizabeth and Trey

Prayers to you, sweet Jacob

Jacob,

May God be with you and your family through all the new things that are being introduced in your life.
I love you and am thinking of you all the time.

Thank you Sandy for the scripture you shared - it is so appropriate.

"Call upon me in the day of trouble; I will deliver thee, and thou shalt glorify me." Psalm 50:15

Please Pray for Jacob

This is an email from Jacob's Mom to me. Everyone, please continue to pray.

We visited the pediatric surgeon today and all agreed that having the VNS implant is the best option for Jacob right now. He had been seizure free for multiple weeks but they have started again. We have also discovered that his sudden outbursts of laughter for no apparent reason may also be seizures. As crazy as that sounds, there is such a thing as "laughing epilepsy" and it looks as though Jacob now also has that rare type of seizure. The little guy couldn't get any more unique!

We set up the outpatient surgery for Monday Feb 2 at 10am. It is less than two weeks away! We were surprised to get in so quickly but are happy that we are having it done before his seizures worsen any more.

The neurologist is hoping that after a few months on the VNS Therapy, he will be able to wean him off of some of his meds. We are all praying for the VNS to be an answer to seizure control.

Please say some prayers for little Jacob on Monday, Feb 2 as he will never understand what is going on and may be a little scared. He will recover for a few days at home and then he should be good as new. I will keep everyone updated through the blog.

Update and new Article

Jacob's Mom informed me that Jacob is doing much better! Thank you, Lord for protecting him!

Also, this is a link that describes his disorder. It was published in a parenting magazine.

Click here to view article